International Myeloma Foundation

MYELOMA MINUTE | Up To The Minute News | 9.01.2022

Will Amazon Deliver Your Healthcare Needs?

In this week’s blog, IMF Chairman of the Board and Chief Scientific Officer Dr. Brian G.M. Durie tackles the recent signed agreement between Amazon and One Medical. The acquisition of the primary health care firm by the multinational technology company is sparking numerous concerns—with massive implications to the future of primary care, healthcare delivery, and health equity for myeloma patients. He also brings to light the limitations of artificial intelligence and why it will take longer before computers and machine learning can become reliable in providing answers to patients. Turning into the news, Dr. Durie discusses the latest FDA emergency use authorization for new COVID-19 Bivalent boosters along with proper guidance. He piques our curiosity on ways to escape aging and elaborates on “biologically immortal” and long-living creatures. He then closes his blog with a sense of optimism, as he looks forward to new advances bringing better outcomes for myeloma patients, to better protection from updated COVID-19 boosters, and to beneficial discoveries that may be gleaned from studies of long-living creatures.  

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Last Day for Applications: The 2023 Brian D. Novis Research Grants 

Today, September 1, is the LAST DAY to apply for the 2023 Brian D. Novis (BDN) Research Grants! Established in 1995 to honor IMF co-founder Brian D. Novis, who succumbed to multiple myeloma in July 1992, BDN Research Grants are awarded to researchers working in the field of multiple myeloma and related disorders, including smoldering multiple myeloma (SMM), monoclonal gammopathy of undetermined significance (MGUS), and immunoglobulin-derived amyloidosis. The grants will support senior research projects with $80,000 each and junior research projects with $50,000 each.

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#kNOwMyeloma This Blood Cancer Awareness Month 

September is Blood Cancer Awareness Month. The International Myeloma Foundation (IMF) is bringing multiple myeloma to the forefront through its #kNOwMyeloma campaign. Throughout the month of September, the IMF will ask one simple question: “Do You Know Myeloma?” The IMF aims to increase awareness of the second most common blood cancer in the world, while engaging with the myeloma community to inspire them to continue advocating for those impacted by the disease. Explore the IMF’s Blood Cancer Awareness website for shareable myeloma facts, research breakthroughs in myeloma treatment, and inspirational stories of hope and resilience from those living with the disease. Get to #kNOwMyeloma by visiting knowmyeloma.org.

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Download the SARCLISA® (isatuximab-irfc) Tip Card—2022 Edition

Sarclisa® is a novel monoclonal antibody directed against the CD38 receptor on the surface of myeloma cells. This is described as a targeted anti-myeloma therapy. Sarclisa kills both myeloma cells directly and recruits surrounding immune cells to enhance the killing process. Get your FREE copy of the IMF’s SARCLISA® (isatuximab-irfc) Tip Card in printed form or as a downloadable PDF with hyperlinks to informative resources. 

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Living Well with Myeloma Live Webinar on September 22

The Living Well with Myeloma Webinar: Psychosocial Care|Common Support Needs and Coping Skills will be held on Thursday, September 22, at 4 p.m. PST. IMF Vice President of Support Groups Robin Tuohy will moderate a presentation by Elaine Wheat Dawson, Psy.D (City of Hope—Duarte, CA). In this webinar, Dr. Dawson will focus on common emotions when dealing with myeloma; coping skills in living with myeloma; dealing with chronic pain; and communication with family, friends, and your healthcare team. The webinar will conclude with a summary discussion and a Live Q&A. Register now to have the opportunity to engage and become empowered.

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Andy Sninsky Fundraiser: Riding Towards a Cure

14-year myeloma survivor Andy Sninsky has once again embarked on his 1,000+ mile bike ride to raise funds for myeloma research. “My goal on these bicycle adventures is to be inspired, as well as to inspire other patients not to give up. If you have a desire to help patients to feel well then, the support you give here will go to research in search of a cure,” says Andy. Will you support Andy's goal of raising $5,000?

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4th Annual Inland Empire/Virtual/In Person Walk for Myeloma Miracles 

The 4th Annual Inland Empire/Virtual/In Person Walk for Myeloma Miracles will be held on Saturday, September 24, 9:00 a.m. PST at Central Park in Rancho Cucamonga, CA. You may register as a participant or a team member, donate to a participant or a team, or purchase a Remembrance Path. Donations will also be accepted on the day of the event. Everyone is encouraged to run, walk, bike, or treadmill their own path to complete the Virtual Walk/In Person for Myeloma Miracles. For more information or to register, visit https://fundraising.myeloma.org/myeloma-miracles.

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#ASKDRDURIE | Dr. Durie's Weekly Web Video Series

Should myeloma patients continue to follow COVID-19 prevention measures?

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Week in Review Blogs by Dr. Durie

Ask Dr. Durie Videos

Online Patient Forum

Smart Patients: Join the Conversation

Clinical Trial Fact Sheets

Phase II Relapsed or Refractory Venetoclax Trial (Accruing)

CANOVA Trial (Fully Accrued)

Phase I/II Trial Using a Venetoclax Combination With or Without Bortezomib (Fully Accrued)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)

 

Upcoming Events

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Pieces to A Cure Quilt Raffle

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9th Annual Guys and Gears Charity Car Show

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Creatives Against Cancer

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10th Annual Miracles for Myeloma 5K Hybrid Run/Walk

Webinar Replays


Watch the Replay
IMF Patient & Family Webinar— Back to Basics: From Testing to Tailored Therapy 

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Regional Community Workshop — East South Central

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2nd Virtual M-Power Charlotte Webinar

Watch the Replay
Living Well with Myeloma — A Promising Future for Treating MM with Bispecific Antibodies

See also, all of our events.

We Thank Our Sponsors:

Amgen, Bristol Myers Squibb, GSK, Janssen Oncology, Karyopharm Therapeutics,
Legend Biotech, and Takeda Pharmaceuticals U.S.A., Inc.

We also thank individuals like you for your continued support!
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