Maine Public: ALS is a little-understood disease. Advocates and researchers say a state registry could help
It's estimated that there are 60 to 70 Mainers living with amyotrophic lateral sclerosis, or ALS. But the true number is unknown. In fact, there's a lot about ALS that's unknown. The Maine legislature is considering a measure that supporters say aims to unlock some of the mystery by creating a state ALS registry.