International Myeloma Foundation

MYELOMA MINUTE | Up To The Minute News | 05.02.2024

Register Now for the Regional Community Workshop in Salt Lake City on May 18

Join us for an in-person Regional Community Workshop on May 18 at the Marriott University Park (480 Wakera Way) in Salt Lake City. Speakers include Peter Forsberg, MD (University of Colorado School of Medicine—Aurora, CO); Doug Sborov, MD, MS (Huntsman Cancer Institute, University of Utah—Salt Lake City, UT); IMF Nurse Leadership Board (NLB) Member Mary Steinbach, DNP, APRN; and more. Topics to be covered include frontline therapy, maintenance therapies, relapsed therapies, clinical trials, management of myeloma-related symptoms and side effects, as well as side effects brought about by treatment. There will also be a special panel featuring patient and care partner team, John and Ann Bailey.

  

 

Share on Facebook LinkedIn

Sign Up for a Virtual Regional Community Workshop on May 21

Join this Virtual Regional Community Workshop on Tuesday, May 21, at 2:30 p.m. PT | 3:30 p.m. MT |4:30 p.m. CT | 5:30 p.m. ET. IMF Chief Medical Officer Joseph Mikhael, MD, M.Ed., FRCPC, FACP, (TGen, City of Hope—Phoenix) will discuss multiple myeloma basics, its common symptoms and side effects, advances in initial myeloma diagnosis, the stages of myeloma treatment, induction therapy, transplant, and more. IMF Nurse Leadership Board (NLB) Member Kimberly Noonan, DNP, ANP-BC, AOCN, (Dana-Farber Cancer Institute—Boston) will discuss how patients can manage myeloma-related symptoms and side effects as well as the side effects brought on by treatment. David Vesole, MD, PhD, FACP, (John Theurer Cancer Center, Hackensack University Medical Center—Hackensack, NJ) will cover the types of relapsed disease, what doctors consider when selecting a treatment regimen, relapsed/refractory treatment options, how doctors treat triple and penta-class refractory myeloma, updates on clinical trials, and more. After each presentation with the experts, attendees will have ample time to ask questions. You don’t want to miss this informative session.

  

 

Share on Facebook LinkedIn

Take Part in the 16th Annual Miles for Myeloma Hybrid 5K Run/Walk on May 4

Lace up your sneakers for the 16th Annual Miles for Myeloma 5K Run/Walk on May 4 at FDR Park (1500 Pattison Ave.) in Philadelphia. This is a hybrid 5K: Participants can meet at the park at 8:00 a.m. EST or run/walk virtually from wherever they are located! You can also support this fundraiser by purchasing a Virtual Tribute Path plaque in honor of or in memory of a loved one. Learn more about how to register for the fundraiser from the button below!

  

 

Share on Facebook LinkedIn

Join the Amplify Black Myeloma Voices Virtual 5K Run/Walk

Would you like to run or walk to raise funds for the IMF M-Power Project — an initiative that partners with cities to improve health equity, increase access to care, and raise myeloma awareness in African American communities nationwide? For this virtual 5K Run/Walk, you can sign up and participate at your own pace. Run or walk from wherever you are located between May 18 and May 25. You may also purchase a Tribute Path Plaque in honor or in memory of a loved one. Together, we can amplify Black myeloma voices in a way that is empowering and fun!

  

 

Share on Facebook LinkedIn

Are You or a Loved One Living with Myeloma? Find a Support Group That Meets Your Specific Needs

Did you know that IMF is a resource for a network of 160+ multiple myeloma support groups in North America? These groups meet either in-person or online. Some address a myriad of myeloma patients' and care partners’ needs. We also have targeted support groups based on your specific situation. These specialized groups are The Living Solo & Strong with Myeloma Group, The Smolder Bolder Virtual Support Group (for smoldering myeloma patients), and The Strength Through Inspiration: A Virtual Support Group for MM Patients & Caregivers Who Have Young Children. Visit the button below to find a myeloma support group near you.

  

 

Share on Facebook LinkedIn

Give to the Cyclists Who Will Tackle the the Inaugural Iceland Cycling Expedition

The Iceland Cycling Expedition (ICE) is a fundraising bike tour taking place in beautiful Iceland with a team of twelve cyclists. From August 29, 2024, to September 3, 2024, 12 intrepid individuals will embark on an adventure across Iceland to support the Black Swan Research Initiative®, including the iStopMM Research Project in Iceland. Visit the Donate button below to give to an individual cyclist on the ride. By giving to a cyclist, you will support the thrill of adventure while being an agent for change.

  

 

Share on Facebook LinkedIn

Around the Web: Myeloma News

To keep you abreast of the most recent myeloma research findings, “The Myeloma Minute” features links to top myeloma content around the web. Read this article on "Daratumumab-based quadruplet therapy for transplant-eligible newly diagnosed multiple myeloma with high cytogenetic risk.” Visit April 2024 – Myeloma News from the Journals  for overviews of top myeloma research from this past month. As always, we invite you to visit the IMF Newsroom for the most recent myeloma news.

  

 

Share on Facebook LinkedIn

#ASKDRDURIE | Dr. Durie's Weekly Web Video Series

What should be done if a patient relapses while in a clinical trial?

  

 

Share on Facebook LinkedIn



Clinical Trial Fact Sheets

KTX-1001 (phase I trial – Now Accruing) 

Phase II Relapsed or Refractory Venetoclax Trial (Fully Accrued)

CANOVA Trial (Fully Accrued)

Phase I/II Trial Using a Venetoclax Combination With or Without Bortezomib (Fully Accrued)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)

Webinar Replays

Watch the Replay
Living Well with Myeloma on 2024 Medicare Changes

Watch the Replay
IMF Patient and Family Seminar

Watch the Replay
Facebook Live with IMF NLB Member Beth Faiman

Watch the Replay
Facebook Live with Dr. Joseph Mikhael and Dr. Gurbakhash Kaur

See also, all of our events.