International Myeloma Foundation

MYELOMA MINUTE | Up To The Minute News | 3.16.2023

Sugar or Stress (SOS): Which Is Worse?

This week’s blog was originally published on February 29, 2012, with information updated for the benefit of our readers. IMF Chairman of the Board and Chief Scientific Officer Dr. Brian G.M. Durie talks about the use of PET scans as a reliable means to monitor multiple myeloma because it often uses a radioactive form of glucose (sugar) to help find cancer cells in the body. He discusses how certain myeloma treatments can push the body toward glucose intolerance, and why it’s important for patients to track their blood sugar and to avoid high sugar items in their diet. Dr. Durie emphasizes the benefits of stress reduction and highly recommends that patients and caregivers explore the IMF’s education and support programs for clear plans on myeloma management. Additionally, he advises taking advantage of the IMF’s Mind, Body, and Wellness program as a resource for wellness education, movement, exercise, and mindfulness practices.

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Take Your Myeloma ACTIONS to the Next Level

Are you taking action during Myeloma ACTION Month and want to take your support for the myeloma community to the next level? Join the Myeloma ACTION Team and be empowered to raise your voice through media outreach, advocacy efforts on Capitol Hill, and Action alerts from the International Myeloma Foundation. Join the Myeloma ACTION Team by 3/31 and let your voice be heard

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The UK’s National Institute for Health and Care Excellence (NICE) Recommends a Ninlaro® (ixazomib) Combination for Relapsed/Refractory Myeloma

In the United Kingdom, the National Institute for Health and Care Excellence (NICE) has recommended Ninlaro® (ixazomib) plus lenalidomide and dexamethasone for relapsed/refractory multiple myeloma (RRMM) patients who have had two or three lines of therapy. This news is important because it provides RRMM patients with an all-oral therapy option which can be administered in their homes.

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Las Voces de Mieloma Support Group (Spanish-Virtual), March 21 

Join Las Voces de Mieloma Support Group (Spanish/Virtual), on Tuesday, March 21, 10:00 a.m.–11:00 a.m. PST. Join us by registering at http://lasvoces.support.myeloma.org. For any questions, please email [email protected].

Las Voces de Mieloma Grupo de Apoyo (En Español/Virtual/), Martes, 21 de Marzo, 10:00 a.m.—11:00 a.m. (Tiempo Pacífico). Únase a nosotros registrándose en: http://lasvoces.support.myeloma.org. Para preguntas, envíe un correo electrónoco a: [email protected]

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IMF Chief Medical Officer Dr. Joseph Mikhael Goes Live on Facebook 

Join us live on Facebook on March 22 at 4 p.m. PST / 7 p.m. EST as IMF Chief Medical Officer Dr. Joseph Mikhael discusses how patients can live well with myeloma. Find out what inspires Dr. Mikhael to be a myeloma practitioner and hear his #MYelomaSTORY this Myeloma ACTION Month!

 

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Living Well with Myeloma: New Drugs in Myeloma – What, How, and When?

The Living Well with Myeloma Webinar on Thursday, March 30, at 4 p.m. PST / 7 p.m. EST will focus on “New Drugs in Myeloma – What, How, and When? What Patients and Care Partners Need to Know.” IMF Vice President of Support Groups Robin Tuohy will moderate presentations by IMF Chief Medical Officer Joseph Mikhael, MD, MEd (Translational Genomics Research Institute—Arizona). In recent years, many new myeloma drugs have been developed and have greatly improved patients' lives. Patients need to know how each drug works so they can make informed decisions with their healthcare providers. During the webinar, Dr. Mikhael will discuss the different types of myeloma drugs, how they work, the drug development process, as well as new drugs and immunotherapy for myeloma treatment. There will be a summary and time for questions at the end of the webinar.

 

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Join the M-Power Charlotte Community Workshop and Discuss Health Empowerment    

The 3rd M-Power Charlotte Community Workshop will take place on Saturday, April 1, from 10:00 a.m. to 12:30 p.m. at Project 658 (3646 Central Ave in Charlotte, NC).  Its focus is to raise awareness of multiple myeloma in the African American community and living a healthier life. Panelists include the following healthcare professionals from Charlotte’s Atrium Health Levine Cancer Institute: Peter Voorhees, MD; Manisha Bhutani, MD; as well as Community Health Partners Tiffany W. Crank, MPH, and Mellisa Wheeler, BSA, WHA, who both work to help people in Charlotte lead healthier lives. The panel will share patient stories and suggest ways to 'M-Power' yourself if you or your loved one are faced with a complicated diagnosis. Refreshments will be provided beginning at 9 a.m. Attendees are welcome to connect and chat until 1:30 p.m. Register now for FREE. 

 

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15th Annual Miles for Myeloma Is Back In Person and Virtual     

The Miles for Myeloma Hybrid 5K Run/Walk will be on April 29, 2023, in FDR Park in Philadelphia. Participants can take part in person or virtually. You can also make a difference with the purchase of a Tribute Path Plaque. Learn more about these tribute plaques as well as how to register. 

 

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IMF Facebook Live with Beth Faiman

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Latest Research on Disparities in Myeloma from ASH 2022

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Top Myeloma Research Presented at ASH 2022

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IMWG Conferences Series at ASH 2022

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