International Myeloma Foundation

MYELOMA MINUTE | Up To The Minute News | 01.25.2024

Register Now for the IMF Patient and Family Seminar 2024 in Boca Raton, FL

The International Myeloma Foundation (IMF) is excited to announce that the 2024 Boca Raton Patient and Family Seminar will take place on March 15-16, 2024, in Boca Raton, Florida. The seminar is FREE, but in-person seating is LIMITED.

Some of the presenters include IMF President and CEO Yelak Biru, Dr. Saad Usmani (Memorial Sloan Kettering — New York), Dr. Matthew Drake (Mayo Clinic — Rochester, MN), Dr. Gurbakhash Kaur (UT Southwestern Medical Center — Dallas), Dr. Peter Voorhees (Atrium Health, Levine Cancer Center — Charlotte, NC), and IMF Chief Medical Officer Dr. Joseph Mikhael (TGen, City of Hope Cancer Center – Scottsdale, AZ). Also presenting at the meeting will be IMF InfoLine Advisor Teresa Miceli, RN, BSN, OCN; IMF Vice President of Patient Support Robin Tuohy; Patient Advocate/Support Group Leader Michael Tuohy; Wendy Thomas, RN (University of Kansas Cancer Center — Kansas City, KS); and Amanda Goodstadt, Esq., Senior Staff Attorney at Triage Cancer.

  

 

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Register Now for the March for Myeloma 5K Run/Walk

This isn't just a run; it's a force for change. During March, we're creating a global wave of awareness for myeloma. This Myeloma ACTION Month, march alongside others in the myeloma community and help us make waves of awareness that touch every corner of the globe. Join us in-person in Boca Raton, FL, or race virtually from wherever you are on Friday, March 15, 2024, at 7:00 a.m EST as we make this journey a pivotal part of Myeloma Action Month 2024.

  

 

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Watch the IMF’s Videos with Key Opinion Leaders from ASH 2023

In this video, Dr. Susan Bal discusses data from a phase I study evaluating GPRC5D-targeted autologous CAR T-cell therapy in patients with relapsed/refractory multiple myeloma (RRMM). Watch it from the button below and see all of the IMF’s coverage of ASH 2023 here.

  

 

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Co-pay Assistance Programs: Now Accepting Applications

The Leukemia and Lymphoma Society (LLS) has a program to secure funding for patient co-pay assistance here. Also, the HealthWell Foundation has opened a fund to help with Medicare co-pays/premiums. The maximum award level is $12,000, covering various treatments. Check eligibility and apply now.

Visit the IMF Financial Assistance page to view a list of links to resources that may help you find additional financial support.

  

 

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Around the Web: Myeloma News

To keep you abreast of the most recent myeloma research findings, “The Myeloma Minute” features links to top myeloma content around the web. This study examines “the role of hepatitis B virus (HBV) in the pathogenesis of MGUS and MM in 45 HBV-infected patients with monoclonal gammopathy.” This abstract reports on the “two-part ALGONQUIN trial [that] evaluated various doses and schedules of the anti-BCMA antibody–drug conjugate belantamab mafodotin plus pomalidomide and dexamethasone for patients who are lenalidomide refractory and proteosome inhibitor exposed.” Finally, the New York Times reports on the potential risk of secondary cancers resulting from CAR T-cell therapies. As always, we invite you to visit the IMF Newsroom for the most recent myeloma news.

  

 

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Clinical Trial Fact Sheets

KTX-1001 (phase I trial – Now Accruing) 

Phase II Relapsed or Refractory Venetoclax Trial (Fully Accrued)

CANOVA Trial (Fully Accrued)

Phase I/II Trial Using a Venetoclax Combination With or Without Bortezomib (Fully Accrued)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)

Webinar Replays

Watch the Replay
Top Myeloma Research at ASH 2023 from a Patient Perspective

Watch the Replay
IMWG Conference Series: Making Sense of Treatment

Watch the Replay
IMF Patient and Family Webinar

See also, all of our events.