One Community, One Question: What Is Your #MYelomaSTORY?

You did it! You made March Myeloma ACTION Month (MAM) a tremendous success. We are grateful to all in the myeloma community who shared their myeloma stories via videos, photos, blogs, or on social media. Through the commitment of people like YOU, this year’s MAM raised global myeloma awareness, reaching over 41 million people in 45 countries. The IMF thanks you for your stories and actions. Read the full press release now to learn what was achieved in just 31 days. 

15th Annual Miles for Myeloma Is Back In Person and Virtual

The Miles for Myeloma Hybrid 5K Run/Walk will once again Redefine Being Together on Saturday, April 29, 2023, in FDR Park in Philadelphia. Through the years, this event has funded 10 Brian D. Novis Research Grants. These grants usher in the brightest minds to the field of myeloma research. Make your contribution to myeloma research by registering now to run this 5K, either in person or virtually. You can also make a difference with the purchase of a Tribute Path Plaque. Learn more about how to register or donate now.

TAKE THE SURVEY: Help Us to Improve Myeloma ACTION Month

Thank you to all who participated in March Myeloma ACTION Month by raising awareness and taking action to support those affected by multiple myeloma. Your dedication and commitment helped us reach over 41 million people in over 45 countries, and we could not have done it without you.

Will you take a few minutes to complete a quick 2-minute survey? Your valuable insights benefit the global myeloma community by helping us to better understand the effectiveness of our awareness efforts and to improve future campaigns. Thank you for your participation!

Las Voces de Mieloma Support Group (Spanish-Virtual), April 18

Join  Las Voces de Mieloma Support Group (Spanish/Virtual), on Tuesday, April 18, 10:00 a.m.–11:00 a.m. PST with Guest Speaker and myeloma patient Teresa Regueiro. Diagnosed in 2009 with high-risk multiple myeloma, Teresa started a multiple myeloma Facebook page in 2014, with articles translated from English to Spanish. After the growth of this page, she founded the Spanish Community of Patients with Multiple Myeloma at the national level (in Spain), and continues to lead the association bringing myeloma information to patients. Join us by registering at http://lasvoces.support.myeloma.org/. For any questions, please email [email protected]

Las Voces de Mieloma Grupo de Apoyo (En Español/Virtual/), Martes, 18 de Abril, 10:00 a.m.—11:00 a.m. (Tiempo Pacífico).
Expositor invitado: Teresa Regueiro, Paciente
Diagnosticado en 2009 de mieloma múltiple de alto riesgo. Comenzó una página de Facebook sobre mieloma múltiple en 2014 con artículos traducidos del inglés al español. Tras el crecimiento de esta página, fundó la Comunidad Española de Pacientes con Mieloma Múltiple a nivel nacional, en España y sigue al frente de la asociación llevando información sobre el mieloma a los pacientes. Únase a nosotros registrándose en: http://lasvoces.support.myeloma.org/. Para preguntas, envíe un correo electrónoco a: [email protected].

IMF Nurse Leadership Board Members Speak at the Oncology Nursing Society Congress in San Antonio, Texas

Management of multiple myeloma includes new regimens and innovative drugs with novel mechanisms of action. These evolving paradigms of care highlight the need for nurse education, shared decision-making, and recognition of disparities. At the Oncology Nursing Society Congress on April 27, 2023, in San Antonio, Texas, four highly experienced nurses will lead a 1.5 CNE symposium on “New and Emerging Therapies for Multiple Myeloma: Case Studies for Nurses.” New and experienced nurses will find helpful insights and tools to implement and share with patients and colleagues. If you have any questions, please contact us at [email protected].

Watch the Replay: Living Well with Myeloma: New Drugs in Myeloma – What, How, and When?

The Living Well with Myeloma Webinar focused on “New Drugs in Myeloma – What, How, and When? What Patients and Care Partners Need to Know.” In recent years, many new myeloma drugs have been developed and have improved patients' lives. Patients need to know how each drug works so they can make informed decisions with their healthcare providers. During this webinar, IMF Chief Medical Officer Joseph Mikhael, MD, MEd (Translational Genomics Research Institute—Arizona) discusses the different types of myeloma drugs, how they work, the drug development process, as well as new drugs and immunotherapy for myeloma treatment. In case you missed it, the replay is now available.

#ASKDRDURIE | Dr. Durie's Weekly Web Video Series

What is recommended for myeloma patients who are doing well on maintenance therapy?